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Sickle Cell Disease

An estimated 72,000 Americans live with Sickle Cell Disease (SCD) in the United States and approximately two million Americans, including one in 12 African Americans, carry the Sickle Cell Trait (SCT). While advances in health care have increased life expectancy for individuals with SCD, much more needs to be done to expand access and improve health care and outcomes.

http://minorityhealth.hhs.gov/templates/browse.aspx?lvl=2&lvlid=206


World Sickle Cell Day is June 19, 2011

In December of 2008, the General Assembly of the United Nations adopted a resolution which determines sickle cell disease as a public health problem and one of the world's foremost genetic disease, requiring heightened awareness and activism, diagnosis and management. The result of the resolution was that June 19th was declared as World Sickle Cell Day to increase awareness of the condition all over the world. We encourage you to tell a friend, family member, and colleague today. Make a difference and sign up for the African American Blood Drive and Bone Marrow Registry for Sickle Cell Disease Awareness.

be the match

Take the first step to become a bone marrow donor.
Join the Be the Match Registry® and you could be the one to save a life.

 

 
The K.I.S Foundation, Inc.

 

 

MISSION STATEMENT


To inform and educate the public and raise awareness about Sickle Cell Disease through community outreach programs and educational scholarships. We will also financially help support the efforts of research institutions to find a universal cure.


About Sickle Cell Disease


Discovered in the United States over 100 years ago, sickle cell disease (SCD) statistics are staggering.  In the US, one in 2,500 newborn babies has the disease and approximately 54,000 babies are born each year with sickle cell trait. There are approximately 80,000 Americans with sickle cell disease and 3.5 million with sickle cell trait and related disorders.  Sickle Cell Anemia (SCA) is an inherited and lifelong condition. While there is no generally applicable cure for SCD, several promising developments have occurred to improve the quality of life and survival of SCD patients. The K.I.S. Foundation also provides financial support to research institutions in the quest to find a universal cure for SCD.